Allow yourself to share your experience with this invisible illness and help yourself and others too. Share your tools, how you deal with everyday life, and gain access to information on Chronic Fatigue and Immune Dysfunction Syndrome and Fibromyalgia (CFIDS/FMS). My mission is to empower patients to take control of their health by providing my own story and experience with treatment information, quality health products, community, and advocacy.
Friday, November 30, 2007
I wanted to mention new site and friends
I joined a new community in November and met some very nice people. I wanted to mention their sites and ask that you please check them out. These are great people with big hearts. Some are chronically ill, survivor's of cancer, a positive influence with faith and hope, and many other interesting types of people.
Tea with Tiffany's Page
Mad Goat Lady's Page
Audra Silva's Page
Kelly's Page
Mrs Kiwi's Page
KiniWoman's Page
Maartje Van Horn's Page
Elizabeth Coplan's Page
Sweetisu's Page
I enjoyed everyone's sites and hope to continue reading them.
God Bless to everyone and I hope and pray those that still suffer have a pain and fatigue free day!
Fibro Viv
Wednesday, November 28, 2007
Howdy, here are some more sites to check out!
Panther Daily Post
Rachel Creative
On Blogging Australia
exQUIZZme
Thanate
Monawea
Neutralizer
Techbeam
Antibarbie
Freebie Fanactics
jwilson
COMMUNITIES TO CHECK OUT:
MyBlogLog
BUMPzee
I have not been able to post, but I want everyone to start checking out other sites too. I will soon post more tips or my own experience soon.
I hope and pray you have a pain and fatigue free day.
Fibro Viv
Monday, November 26, 2007
There are more sites to checkout
Cuddling Cute Babies
2 Tired 2 Talk
Pynoyskull
Calabashcreations's
LucyDee's
Stinkypaw
CaseyFern
Rosemarie
Slyvisions
There are lots more, I have so many sites I like and there are so many wonderful people to meet. Take time out to read the different sites.
Fibro Viv
Speedcat Hollydale Page
Speedcat Hollydale is a very positive individual and my friend. My tip for today is to go out and check out other sites. Do you want to smile? Check out Speedcat Hollydale Page and you will smile, I promise.
Speedcat Hollydale Page
Here is a list of other sites:
Blogging for Friendship
Rhyan
Fossfor
Sephyroth
Sherrillynn's
Humor in Pictures
Lurking Chihuahua
Family Site
Stupidose
Learn how to blog for money
Franchise Talk
Stacie's Blog
Illusionaire
Julie's Blog
Enjoy these sites and get to know the people. I will add more later.
Fibro Viv
Friday, November 23, 2007
How I Deal?
Everyday we face challenges and have the opportunity to embrace them with a negative or positive attitude. I deal with my pain and fatigue by thinking about how this illness has changed my life and why I try to continue to invest myself in other peoples’ life.
It makes me feel better to share information and answer questions. I am being selfish by doing this. Why do I say that? Because it feels good to have people write and tell me they like reading my blog, it helps my self-esteem.
People with chronic illnesses have to find a way to make themselves feel better. I guess this is my way of feeling better about myself and in the process I pray I am helping others.
My goal now is to share how to view our illness in a positive way. God has chosen us to take on this challenge and it is up to us to make peace with it and then transcend all our emotions and feelings with a full understanding of what his plan is. I believe he wanted me to share my own experience, share tools and information. I wanted to go into social work my first year in college. As soon as I was given cases to work on, my empathy was too strong and I could not help anyone without crying. That was the end of that dream.
While I enjoyed my career and found it to be a great learning experience, I wasn’t doing what I originally wanted to do. So, maybe this is God’s way of granting me the opportunity to help others. Here are some questions to ask yourself and I would like others to give me feedback.
1). Has this illness changed my personality?
2). I know I had to make lifestyle changes? Would they have happened for another reason? Perhaps due to age, wisdom or life experiences?
3). Am I accepting my path in life?
4). The choice is mine, am I embracing this illness and learning to think about all the other great miracles in my life? I do have many things to be grateful for, so am I focusing on those things? If not? Why not?
I hope and pray that my babbling today has helped someone today. Please respond and give me feedback.
Fibro Viv
Thursday, November 22, 2007
Thankgiving, what is it about?
I pray and hope that I have been able to share my own experience and thoughts in a way that touches someones life. I know I have read many sites that share their experience and it has helped me.
I am grateful to have met many wonderful talented people on the Internet. I am grateful for my family and friends and the many memories I have from the past and I am looking forward to the future.
May God Bless everyone and may we meet again.
Viviana
Saturday, November 17, 2007
Sorry Everyone
I will not be able to post anything today because I am still feeling fatigue. I am sorry I could not post everyday in November. I gave it my best.
I will say a special prayer for everyone experiencing pain and fatigue.
God Bless
Fibro Viv
Thursday, November 15, 2007
What is happening today?
Hello My Friends,
I am writing to let you know I have come down with some type of virus that causes an upset stomach, diarrhea and headaches. Not fun. The pain has been extreme for the past few days and today I am just worn out. I slept for a long time and I am still tired. Does that sound familiar? Yes indeed.
I have been following my own advice on pacing and taking good care of myself. Drinking lots of water, taking my supplements and resting. This is what keeps me going. My husband cannot believe I am set on posting everyday in November. Well, today’s post is about me. Sorry.
I have not been able to visit my new Grandchildren since who knows when, I cannot keep up with the dates and I gave up trying a long time ago. As long as I stay positive and take care of myself, the dates do not really matter. I keep a daily journal and I still have to ask about one hundred times a day, what day is it today? Since my husband has a brain injury he also forgets the date. We make a great couple:) Two half brains surviving in this world and trying to teach our children right from wrong. I believe we are succeeding because our young men are all very considerate and loving.
So my niece goes in for surgery early tomorrow morning and I will try very hard to go see her. It may not be before surgery, but I will make it, I am determined. She is very loving and considerate of others. She never forgets a birthday, keeps up with all family illnesses, news, etc. You might call her the family monitor. Bless her heart, she is in so much pain and this surgery is suppose to help. The doctor is placing some type of apparatus in her spine for a period of time to see if it helps her. If it does, then they will implant it forever. She is so brave to undergo this procedure and she is always saying “Auntie, if this helps my pain, maybe you will try it for your pain.” She tends to worry about everybody, she has a big heart and a very brave soul.
I am just afraid to loose total control of feeling pain. Does that sound weird? You see our body has its own natural mechanism alerting us of our pain. I am not against her having this surgery, it is a personal decision. I know how to manage my pain and if I continue sticking to my own pain strategies, I don’t believe I will require surgery. I am much older than she is and I guess I am also afraid of not being in control of my own body. As I said, she is much braver than I am. Plus I truly do not have time to be in a hospital and I need to conserve my energy for my family.
So, I have a favor to ask. Please pray for my niece, Esperanza. Pray that everything goes well and this new technology helps her pain. Pray for a fast recovery.
I thank you and I pray and hope you are not experiencing pain or fatigue.
Fibro Viv
Wednesday, November 14, 2007
Pain Management Treatments and Attitude
I have mentioned in the past my PCP referred me to a Pain Management Doctor. This doctor referred me to a Pain Management Facility called St. David's Rehabilitation Center. What I liked about this particular center was that they set forth principles and standards to meet individual needs. I was working and decided to take medical leave. Thank goodness I had saved my vacation time and had some sick time available.
The center set up an initial interview to find out what my particular needs and to set goals. You might think this would be overwhelming. It was not because I wanted to get on with my life and I wanted to learn how to manage my pain. The whole idea on their part was to help me become independent with management of recurrent symptoms, develop strategies and habits that maximize my ability to function and decrease the frequency and intensity of symptoms.
These were my goals:
1). Continue working or in my case return to work.
2). Increase my current functional abilities and endurance level.
4). Learn how to self-manage my pain without having to always rely or be dependent on my doctors or medication.
They offered Individual and Group Treatments as follows:
1). Physical Therapy
2). Psychological Therapy
3). Occupational Therapy
4). Biofeedback evaluation and treatment
Unfortunately, my insurance did not see the need for Psychological or Biofeedback. My doctor wrote a letter and they still denied it. St. David's was nice enough to let me in on one session of Individual and two of Group Psych sessions. At that time I was not depressed, I was eager to move forward and had a great attitude. That was because I was finally diagnosed with fibromyalgia and chronic fatigue and all of my close friends and co-workers were very supportive. Hence, when I was evaluated for Psych issues, I was fine at that point in time.
My program included Physical and Occupational Individual and Group sessions. There were days I did not think I could get out of bed, get dressed and go to the facility. The support of my loving husband was magnificent. I would not have made it without his help and guidance. God Bless him.
I was feeling so good I wanted to go back to work before it was time, plus I was running out of vacation and sick time. A dear friend came over to visit me and could not believe the difference in me. I was smiling, feeling and looking good. So I talked my PCP into signing a form releasing me and allowing me to go back to work. That was a mistake because I tried to continue my therapy part-time and my new boss was not as supportive as he said he would be. I was already working for a great Director and new Senior Manager. I let this other Director talk me into transferring to his team prior to returning to work. All he wanted was for me to join his team and he knew my past team members would follow. He ended up with an excellent team combined with some of his own excellent members. Unfortunately he never made it clear to his prior team members that I was there as a mentor and guru, so to speak. I was not there to become their Team Manager or take over. This caused me a lot of stress which caused my symptoms to increase beyond my own control. I just wanted to continue working, I did not want to continue working at the pace I was accustomed to and had no desire to move up the ladder. I knew what my limitations were and just wanted to support my family. That whole experience is still difficult for me to believe it even happened. I did make some new friends and will never forget the people that were not competitive. It also opened my eyes up about certain individuals and their characteristics. All in all, I did gain insight and learned from this whole experience. I am sorry to fall off track here....jeez, let it go, Viv, let it go! You see, we have to do a lot of self-talk.
I want people to be open to treatment centers. I know it is hard to get motivated enough to get up and get dressed. Trust me, it was worth it to me in the end. I still use the treatment strategies I learned.
When you are referred to a treatment center you should look for the following:
* What type of patients do they serve?
* Are the health professionals trained in teaching and treating acute or chronic pain?
* Is the program supervised by a licensed director or manager?
* Will they stay in communication with your doctor?
* Try to meet each therapist that will be working with you.
* The center must be able to assess and treat physical and psychological treatments.
* Do they offer brochures, pamphlets, etc. you can keep?
* Do they have someone that takes care of all the paperwork required to start and continue the program?
* What type of insurance is required? Do they offer any discounts or sliding scales, if necessary?
* What type of complaints have they had or encountered?
* What is their exact method of evaluating an individual and do they offer treatments that meet your goals and expectations?
* Try to talk to people that have already experienced treatment at that particular center.
I know it seems like a lot to do, hopefully your doctor has already sent other patients to that particular Pain Management Center. If you have to find one on your own, keep a list of what I have listed to help you find the right place. There were some patients that had no desire to get better and all they wanted to do was complain. They felt the effort to get up and actually follow the program was too much. Attitude has a lot to do with the success of any program you join. In the beginning it is not easy, but it gets easier and the knowledge you gain is long lasting and beneficial to you and your family.
I hope and pray this information has helped someone today.
Fibro Viv
Tuesday, November 13, 2007
This is for my friend, Bobby
the seed of an equal or greater benefit.
- Napoleon Hill
Bobby, I hope and pray you feel better as each day passes.
Viviana
Stressed Out? Who me? Yes You!:)
Did you know that the more stress you are under, the more you have to take better care of yourself? Lets think about the signs and symptoms associated with stress and what stress is controllable or uncontrollable.
PHYSICAL SIGNS:
- Dry mouth
- Headache
- Faintness
- Heart palpitations
- Clumsiness
- Stomach aches, knots, nausea and cramps
- Constipation or diarrhea
- Short and shallow breathing
- Sleeping too much/too little
- Lump in the throat
- Sweating, clammy hands
- Fatigue
- Chest pain, muscle spasms or a feeling of a tight chest
EMOTIONAL SIGNS:
- Excessive nervousness or anxiety
- Feeling overwhelmed
- Nightmares
- Chronic irritability
- Constant feelings of resentment
- Anti-social
- Feeling down and alone
THOUGHT RELATED SIGNS:
- Difficulty making everyday decisions
- Memory problems
- Worrying everyday
- Expecting the worst
NOTE: Identify your stress symptom, then think about how you might be able to change the situation or if it is uncontrollable.
Here I go again, write it down and ask yourself these questions:
1). Can I control this event or situation? Can I change it?
Go with the flow and do something different. Save energy for something you can impact and change.
__________________________________________________
__________________________________________________
2). How important is it?
Think about it, will you or anyone remember what has happened or what was said?
__________________________________________________
__________________________________________________
3). Has this happened before? If so, how did I handle it?
Don’t spend so much time worrying and take time out for yourself.
__________________________________________________
__________________________________________________
4). What is the worst possible outcome?
Breathe deeply, relax, practice positive imagery and meditation.
__________________________________________________
__________________________________________________
So, how do I cope? Humor and laughter goes a long way. Sure I have brain fog, so what if I forget what to call a cup, plate or a name. It isn’t the end of the world. I am still alive and typing away, it may not make sense…..but I am trying. That is all I can ask of myself, is to try and keep things in perspective. Live life and enjoy the good moments we have. There is always someone down the road with greater challenges. We just have to learn to accept ourselves and believe God is with us every step of the way.
I hope and pray this information has helped someone today.
Viv Fibro ( Have you every done that? I always write things the wrong way!:))
Fibro Viv
Monday, November 12, 2007
Setting Goals and Pacing Worksheet
Set daily goals first, then weekly, monthly and three month goals:
Make sure you set small and realistic goals.
1). Today I would like to:
_________________________________________________
_________________________________________________
_________________________________________________
2). What factors (within my control) make it hard for me to reach this goal?
__________________________________________________
__________________________________________________
__________________________________________________
3). What can help me reach this goal? Who can help me reach this goal?
__________________________________________________
__________________________________________________
__________________________________________________
4). To improve my pacing and get enough rest, I will do what?
__________________________________________________
__________________________________________________
__________________________________________________
Note: Use this worksheet or log to set goals to rest and pace yourself.
I hope and pray this log/worksheet will help someone today.
Fibro Viv
Sunday, November 11, 2007
Can You Improve Your Pacing?
As you read this post you will think I am repeating myself. Well, I am. Why? Because I know I struggle with pacing myself and I believe you do too.
The experience and management of chronic fatigue caused by fibromyalgia is different from the more commonly experienced acute fatigue with regard to specific relief measures and its causes. Management strategies we must utilize to reduce energy consumption and consequently delay the disabling effects of fatigue include the following:
Try doing less and please accept help from others to conserve energy. There are also recharging efforts such as, rest and medications. We can also enhance resistance to fatigue with the proper nutritional strategies, proper physical activities and stretching or exercising at our own pace.
I am always trying to think of ways that I can pace some of my activities. Sleeping well and resting. Persistent lack of sleep can produce emotional upheavals such as irritability, mood swings, and feelings of depression. So if you need help in this area, talk to your doctor.
Try getting into a routine of regular activities and sleep schedules. Go to sleep and get up at approximately the same time everyday, including week-ends. While they say naps can interfere with your sleep cycle, personally I have to take a nap during the day to survive. If you find it does not help you, stop napping.
Remember that just moving around will help to release tension and promote sleep. I am working on a worksheet for you to use that should be helpful. Please keep checking my site out for those worksheets.
I hope and pray someone listens to me and makes an effort to improve pacing.
Fibro Viv
Saturday, November 10, 2007
Balancing Life and Our Priorities
Lifestyle adjustments are the decisions and actions we take to enable us to manage and take control of our health challenges.
I have found that I have had to simplify my life. I was forced to quit working, and mourned that part of my life for a long time. I tried to understand why I missed the deadlines, stress and work in general. I realized that what I missed was the people. My family is important to me, but work was also important and I enjoyed it. I may have lost my job, but I did not loose who I was or who I am. It is difficult to come to that conclusion immediately. I hope that anyone that has experienced what I have will also learn to understand the different aspects of our lives. Sometimes we need to talk to someone about how we feel or write it down to help us sort out these feelings.
The most critical part of learning to live well with fibromyalgia and chronic fatigue is making those lifestyle adjustments. We cannot change the past or our genetic makeup. However, there may be aspects of our lives that we can change or ‘adjust’ in order to improve our health and quality of life. These critical adjustments involve the following:
1). Setting Priorities - We have to decide what is truly important.
2). Pacing and Scheduling Rest - It is vital to our health that we take time out of each day to rest and relax.
3). Self Monitoring - Monitor yourself and your activities. Keep a journal. I know that I repeat myself a lot. Keeping a journal is very important. It will enable you to figure out what works best for you.
4). Sleeping Well - I either have to sleep a lot or cannot sleep. I listen to my body and just sleep anytime of the day. I know it can be difficult, especially when you have small children to care for. Ask someone to help you, so you can take time to rest.
5). Priority Adjustment - Decide what is important, pick your battles, save energy, simplify, carefully evaluate your “To Do List.”
======================================================
I have created a worksheet for you to complete. I think you find it interesting. Here goes:
What activities are the most important for me to accomplish on a regular basis? List it by importance.
1).______________________________________________________
2).______________________________________________________
3).______________________________________________________
4).______________________________________________________
What are some things that I would like to do but am currently unable to accomplish?
1).______________________________________________________
2).______________________________________________________
3).______________________________________________________
What prevents me from accomplishing the list in question number 2?
1).______________________________________________________
2).______________________________________________________
3).______________________________________________________
What resources might help me accomplish the list in question number 2?
1).______________________________________________________
2).______________________________________________________
3).______________________________________________________
Now…..review your answer to question number one (1). You might not realize this, but we have already established priorities in our lives. Some of these may be family and social expectations. You have to think of them as “What might be best for you as an individual with fibromyalgia and chronic fatigue”?
How do the priorities of others in your life compare to your values and priorities? We all have demands and desires on how we can improve our situation. Please remember what is important and try simplifying your life for your sake as well as your family.
I hope and pray this information has helped someone today.
Fibro Viv
Friday, November 09, 2007
Relaxation and Inducing a Sense of Well-Being
Try finding a quiet place and sit on a comfortable chair with arms. Rest your arms on the arms of the chair. Sit erect with your feet flat on the floor. Do not cross your arms or ankles. You might try turning on some relaxing music.
1). Breathe in deeply through your nostrils and allow the air to fill your lungs.
2). Exhale slowly though your mouth, letting the air flow out.
3). Pause at the end of the breath, neither breathing in nor out. This pause lets your mind come to quietness.
4). Repeat breathing in and out. Watch the breath as it goes in and comes out each time. You will start getting more and more relaxed.
Now that you are feeling relaxed, mentally think about what part of your body might still feel tense or tight. Let this tension go. Try relaxing your forehead and jaw.
It is time to use visual imaging. Think about a time that you enjoyed and you will find yourself feeling better as you think about those wonderful memories. Plan for the future and visualize yourself looking and feeling better and healthier.
I hope and pray this tip will help someone today.
Fibro Viv
Thursday, November 08, 2007
Lord I Feel So Alone
Lord I Feel So Alone
Lord I feel so alone,
Trapped in this body of pain,
I try to keep my faith in you,
But yes I do have a day where I feel so alone.
Lord I feel so alone,
Trapped in this body of pain,
I try to feel normal and smile each day,
Feeling so helpless within myself,
Yes, I do have a day where I feel so alone,
Yes, I do have support and love all around,
Yet, they do not feel the pain as I do.
Lord I feel so alone,
Trapped in this body of pain,
You send your Shepard's my way to help,
This is what keeps me sane.
Lord I feel so alone,
Trapped in this body of pain,
My family and friends are there sometimes,
Yet they do not feel my pain,
They say I look great and I smile at them,
I wish I could tell them I felt that great.
Lord I feel so alone,
Trapped in this body of pain,
Like a clown hiding behind a happy face,
I feel like I am deceiving everyone,
Trying to keep my faith in you,
I feel I am deceiving you too,
Asking my family and friends to keep their faith,
Yet sometimes I feel so alone.
Lord I feel so alone,
Trapped in this body of pain,
Please help me feel my faith again,
Please help me practice what I preach each day,
Yet I feel so alone.
Lord I feel so alone,
Trapped in this body of pain,
You send small miracles down my way,
That is what keeps me sane.
I want to feel normal again someday,
I want to help people who feel my pain,
So I ask, is this what you had in mind?
Will I reach my goal to help others too?
Lord I feel so alone,
Trapped in this body of pain,
Please help me push myself each day,
Helping others feel no pain,
Most of all help me stop feeling this way,
Lord I feel so alone.
Viviana
Copyright Viviana Walters @http://fibroviv.com/
Wednesday, November 07, 2007
My Answer to Someone’s Questions
I know how you feel right now and I want to help you and everyone else that suffers from Fibromyalgia and Chronic Fatigue.
I am doing fine these days. I became a Grandmother on October 31, 2007. I thought I would never be able to hold my Grandchildren because of my fatigue and pain. I believe my faith and prayers made a difference and made it possible for me to find the strength I needed to stay positive, try new products, medications to help me feel better. This is why I started my mission to help others too.
Yes, I noticed you have not been on any forums or boards. In fact, I felt you pulling away from me. I know it is hard to trust someone over the Internet. Especially since you experienced such negative responses and attitudes from your own friends and co-workers.
People do not want to hear or be around sick people. They only want to experience good things. Well, the only way I can feel good about myself is to reach out to someone like you, my friend. It is hard to accept help or even ask for help. I was fortunate enough to have good friends, co-workers and family members willing to reach out and try to help. I know not everyone is that fortunate.
I am sorry to hear you are experiencing a deep depression. These are your words:
Right now I am in a deep depression. I have prayed and prayed for God to take me. But here I am.
Do you ever get really depressed? I just lay in bed and cry. I hate it. Is it part of fibro?
When an individual is experiencing extreme pain and fatigue it is normal to feel depressed. Seek medical help and don’t let anyone blame you for feeling blue. I still remember the morning I woke up and suddenly I felt extreme pain, fatigue and everything else that goes with this disorder. I was fighting it and struggling to find out what was going on. I continued working and I deceived myself, believing that it was just the flu, my gall bladder, anything the doctor tried to rule out. I just knew things would get better. The truth of the matter is I hit rock bottom and felt useless, worthless, stupid, and much more. Do you remember the poem I wrote? It expressed how I felt. I will post again. The depression is caused by the fatigue and pain you are experiencing.
I’m hurting so badly. The medicine I take only at night and do not take during day or I’d get nothing done. But it makes me bolder, I find myself saying and doing things that I would never have nerve and be brave enough to do. Is that normal with meds?
Talk to your doctor about the medications you are taking. Everyone reacts differently to medications. What types of things are you doing and saying? How do you feel when you say something you normally would not have said before? I suggest you write down how you feel and think about what might have caused those reactions you are talking about. It will help you sort out those thoughts and emotions.
When I talk to a doctor or individual that does not believe in fibromyalgia or chronic fatigue, I feel sad and alone. I have to take back control of my emotions and just forget about them. I know what I feel everyday of my life. They are not experiencing my pain and fatigue, yet they make judgments and mean remarks. The way I deal with this is to just pray and ask God to give me the strength to forget about them. God knows what we are feeling. Don’t let them hurt you.
I’m sorry to ask all these questions. I just feel lost. I wish I’d die right now. Its not just the pain its everything. I feel like I am holding on to a thread. The least thing upsets me and makes me feel like I’m having a nervous breakdown. Do you ever feel like that?
My friend, never feel badly about asking questions. I am here for you and anyone else that seeks encouragement and help. I too felt lost and wanted to give up. I have cried myself to sleep because of my pain and fatigue. I did not want to complain to my family and friends. I found that crying, praying and resting helped me. However, you need additional support and help. Talk to your doctor, you may need to change your depression medication. In the beginning I had to try several different types of medications to help me deal with the pain and fatigue. I also suffer from panic/anxiety attacks. I have to take medication for those attacks. They are hard to deal with, you feel closed in, lost and unable to breathe. Do not try to handle these emotions on your own. Seek medical help and try to join a support group.
You have to seek help, be open to expressing your feelings, write them down, keep a journal and please try Cognitive Behavioral Therapy. Positive self-talk helps me out tremendously. I promise.
I better go. Take care. I hope everything is well with you and your family.
I am worried about you and want you to call me. I know you find it hard to trust, please let me help you. Thank you for asking about my family. They are hanging in there. Please remember you are not alone.
The only reason I am answering you on my site is because I know you are not the only person feeling this way. Just know you are helping others too. I know you have a big heart and want to help people too. Together we can help each other and spread the word about this horrific disorder.
Love your friend,
Viviana
Tuesday, November 06, 2007
How to Perk Yourself Up During the Day
1). Drink lots of water, it keeps you from getting dehydrated and is a natural way to get energy. Our metabolism runs properly with the right amount of water.
2). Eat protein. Start off your morning with some type of protein. It will keep you going until lunch time.
3). Eat small meals throughout the day, instead of large meals. The key is to eat slowly and make it small portions. Give your stomach time to realize it is full. Don't rush your meals.
4). Eat healthy snacks such as; fruits, veggies, peanuts and almonds. These help boost my energy level throughout the day.
I know fatigue is a drag, literally! So try to stop worrying about things you cannot control, let go of frustrations and resentful emotions. These emotions cause anxiety and pain. Negative emotional thoughts can be exhausting, think positive:) The only person that has control of your emotions is you. Don't let people push your buttons. If you feel you are all alone, please send me an email and I will try to be there for you. You are not alone.
I find that if I take time out for myself, try to relax, think positive thoughts and follow a healthy diet, I have better days. My biggest problem is remembering to pace. When I feel half way decent I tend to over do.
Together we can fight this illness and stay focused on taking control of our health and life.
I hope and pray this information has helped someone today.
Fibro Viv
Plan for changes in the Weather
One key thing to remember is that cold weather tends to increase pain for most people that suffer from CFIDS/FMS. Cold or damp weather along with poor sleep, fatigue, stress or over-exertion makes our pain worse.
Plan for the cold weather coming soon. I use rice packs to keep me warm at home and try not to go out too often. Some of us cannot stay home, so plan to keep warm. Herbal medications, massage therapy and aromatherapy are especially helpful during the winter.
I hope and pray this information has helped someone today.
Fibro Viv
Sunday, November 04, 2007
What is important for people with CFIDS/FMS?
It is important that we learn how to pace. I have been going non-stop prior to the birth of my Grandchildren. Two twin girls! I am a first time Grandmother living on fumes! I have done that which I ask all of you not to do. What did I do? Overdo!!! Shame on me:(
I know I must slow down and take some time to recover. The twins were worth the pain and fatigue I feel at this moment. The main thing I have to remember is that they will need me in the future, so I must go back and follow my own tips.
We must try to pace or we will end up in the ditch. I can hardly keep my eyes open. So, this post will be short.
TIP OF THE DAY
It does not matter what is happening in your life, you must remember to “PACE.” If we do not pace ourselves we fall back and mess up our goal to take control of our health. We need to be healthy for our family. Please learn from my mistakes and take good care of yourself.
I hope and pray this information has helped someone today.
Fibro Viv
Saturday, November 03, 2007
Energizing Activities and Considerations
Physical Activity verses Exercise
I know it is difficult to think about any type of activity when you are extremely fatigue and in extreme pain. Try thinking about physical activity verses exercise. Physical activity basically refers to being in motion while exercise refers to physical exertion, often to develop or maintain physical fitness.
Set attainable goals, such as simple stretches while in bed. Also, try walking slowly around your bedroom or living area. Take it slow and keep yourself motivated, stay positive and ask for help.
I know you can do it. When I have a flare-up, it takes a lot of effort to just get up and take a bath. I start by stretching before I get out of bed. Sometimes I am so fatigued, I cannot even take that bath. So, I use body cleansing cloths and wash myself off. Then I use heat against my body to help the aches and pains. While in bed, I stretch my arms, legs, fingers, hands, etc. Yes, I rest in between each stretch. Try it.
I hope and pray you will try to move today.
Fibro Viv
Friday, November 02, 2007
Understanding Pain and Taking Control
Our pain signals travel through a system of nerves in our brains and spinal cord. Our bodies try to produce chemicals to help block pain signals. They are called endorphins. There are different factors, such as our emotions and thoughts that cause the body to produce endorphins. Different types of treatments can can stimulate the body to release endorphins or block pain signals. Such treatments can be medications, cold and heat treatments, tens units, yoga, stretching and a number of other treatments.
The list noted below can cause your pain to feel worse:
* Anxiety
* Focusing on pain
* Stress
* Depression
* Focusing on pain
* Overdoing, not pacing yourself
The list noted below can help you block pain signals:
* Relaxation
* Medications
* Massage
* Distractions
* Some Topical pain-relievers
* Humor, positive attitude and pleasant thoughts
* Heat and cold treatments
* Stretching, Yoga, Appropriate Exercise
Managing our pain is a job in itself. So try thinking of pain management as a positive step towards taking control of the pain. I remember going to my pain management classes, while it was difficult to get up out of bed, bathe, and get ready, by the time I completed the days schedule I felt better. I know how difficult it can be to try and get up when you are in pain and have extreme fatigue. If we want to feel better, we must take an active role in working towards managing our pain and fatigue. Adjusting our thoughts and attitude helps us meet our goals.
Try the following steps towards understanding how to control pain:
1). Practice self-talk, consider what you say to yourself. Be positive and don’t say, “I just don’t feel well enough to complete those stretches, it hurts to move.” Try this, “I don’t feel like stretching, but I know I will feel better after completing them.”
2). Try not to focus on the pain and if you do, at least try listening to that pain and ask yourself what you might be doing at that moment that caused the increased amount of pain. Think about what you might do to help decrease that pain.
3). Plan and keep a positive attitude. Talk to your doctor and ask about different treatment options. Plan out your day, medications, and practice relaxation.
4). Be honest with yourself and consider your behavior and habits. Do you need to change something? Be open to change.
5). Try tracking your pain. This will help you figure out what increases or decreases your pain level. It does not have to be something fancy or hard. Keep it simple. On September 3, 2007 I created a Daily Journal for Tracking your Pain. Go back and print out a copy of it and use it. Take it with you when you visit your doctor.
We all suffer from short term memory loss, seek help, ask your partner, a family member or friend to help you remember to track your pain.
Please remember you can write to me and ask questions or just vent. I want to help. That is my mission, reaching out and helping you.
I hope and pray this information has helped someone today.
Fibro Viv
Thursday, November 01, 2007
Working towards conquering Chronic Fatigue and Fibromyalgia
Today I start my goal to write and add a post everyday in November. One of my goals is to educate, share information, tips, tools, and share my own experience with people. I want to offer people encouragement, acceptance and help.
There are still people, including members of the medical community that do not believe in chronic fatigue or fibromyalgia. This makes it difficult for people seeking help and support.
It is devastating to experience our health go downwards without any type of warning or explanation. Our life changes dramatically and we have to remain positive and strong for our own sanity.
The first step towards taking control of our health is knowing what to expect and what it means to have these disorders. Education, support, acceptance and love is the key to learning how to manage the pain, fatigue and the impact it has on us.
People react differently to pain, fatigue and change. I want to reach out and help people seeking support and acceptance. I pray and hope I can do this on a daily basis.
Please feel free to post comments and questions. Share your own experience and please open yourself up to accepting help. I am here to help you deal with the everyday challenges of life and together we can work towards conquering Chronic Fatigue and Fibromyalgia.
I pray and hope you have a pain free day.
Fibro Viv
NOTE: Please understand I am not a medical professional, please talk to your doctor prior to completing any tips I offer. God Bless.
Wednesday, October 03, 2007
Three Generous Helpful Men!
There are two special guys that have helped me with my posting on SEO meme. Please go out and checkout their websites. They have big hearts and are willing to help anyone. Bobby opened my world up to new communities and friends. Hi guys:)
REVELLIAN
SPEEDCAT HOLLYDALE
I also have another friend named Andrew who has been so generous with me and set-up my new site. We are working hard at perfecting it. So I will be moving soon. I will keep you advised. Andrew also reviewed my site and he is from Australia! Cheers Andrew:)
ANDREW
So everybody please go out and check their sites out!:)
Fibro Viv
(Viviana)
Monday, October 01, 2007
Update on Home Exercise Program
I have posted the different tips on things you can do at "Your Pace." I am now going to outline how to follow these tips I posted previously:
1). Spine towels; 2-3 times a day for 10 minutes.
2). Posture scans; every 1 hour (sitting or standing).
3). Stretches: (Chose 1 every hour).
a. doorway chest stretch, 30 seconds times 2
b. prayer stretch
c. ironing board
d. shoulder blade squeeze - arms behind back
e. should blade squeeze - arms at head
4). Stabilization
a. lying on back -pelvic tilts coordinated with breathing (5 minutes)
Please remember to do this at your own pace. This exercise program helps me and sometimes I cannot do all of it. It is Okay. Just do what you can.
I hope and pray this information helps someone today:)
Fibro Viv
Saturday, September 29, 2007
News on Bobby's ideas for SEO, meme
http://revellian.com/2007/09/28/revellians-posts-seo-meme/is my friend and has opened my eyes up to many different things. I have met some pretty wonderful people because of him.
His latest brainstorm as a blogging expert is this meme taking off and becoming incredibly successful, so those that get on board early will see benefits from incoming links, and meeting new contacts. The premise is made clear by the following....
Start tag
This is a new fun seo meme ride for us all. This is based on the seo theory that links to posts inside your blog are more important than links to your home page. I have selected three posts I want to promote along with my site’s name. You will do the same thing.
Let’s keep it simple and spread our good work around to both share and build some ratings! Make sure you pick three posts that you feel are your best.
You could also select 3 posts you simply want to promote. Your site name is listed with your 3 selected posts beneath.
Once you have your post up: Add the sites and post links of the folks you tagged onto your post.
Try to add the site and post links to anyone involved to maximize the effectiveness. Tag a minimum of 5 people or go wild like me and tag 15!
Try your best not to double tag people so it will spread better! Please actually read the posts from everyone so you can see some really good work from our beloved blogging friends!
Make your title a little different from mine to avoid repetitive titles. Please try to maintain some friendly updates to your post.
Revellian dot com SEO Keywords For Beginners Content: The Kings Illegitimate Stepchild Tales of Blogger-X Illusion
Mariuca - Wishing On A Falling Star Love In Disarray In Love With A Dream The Good Client
Mariuca’s Perfume Gallery Perfume Shopping Spree Defining Beauty In Full Splendour
Speedcat Hollydale Page Rocket Boy in Hawaii - DC9 Speedcat's Death Ride into Terror! The Boy Inside All Men
First Time Dad Homer Kidnapped Something Ends Good Night Sweetheart! Hello Basil!
LadyJava’s Lounge Are you a Genius??, The secret to a happy marriage, I’ve got a twitch in my eye
Rooms of My Heart Let’s Celebrate with Us, Join Tribute to Dads Project, 8 things that make who I am now
Being Woman - The Joy of Being One A Handbag Lunatic, A Real Deal, What makes you fat?
Make Money Online Share Uploaded Files and Earn, Fight Back against computer-security threats, Earn Money 3 Ways with Shareapic Program
Cat Tales Sunday was Bathday, Someone got locked in!, When she’s sleeping….
R Playground Friends101 Shy Blogger Soul Music,
Fibro Viv -Lord Take This Pain Away , My expereince with Liquidity,
My own experience with CFIDS/FMS
ADD YOURSELF, POST, THEN GET ADDED AT BOBBY'S SITE WHEN DONE BY LEAVING A COMMENT at Revellian’s Best Posts SEO Meme
End tag
I TAG: Andrew on facibus on blogging friendships
Thomas Photos from Northern Norway
Fossfor - All kinds of neat stuff
TechTreak -Another friendly blogger
Folks, I am sorry for posting this over and over! I finally figured out how to do this right, with a lot of help from Speedcat and Bobby! Thanks guys:)
Viv
Sunday, September 23, 2007
Off Subject: Contest and Review
I thought I would change the subject a bit and let you know about a CONTEST. The following site Slyvisions.com, is currently having a blog contest. You can easily enter and win just by reviewing his blog and the contest, or by donating $5. What's the reward? A free 125x125 ad spot, a free review, and a link on his blogroll. Besides you can also help him get his new Macbook Pro. Don't we all want to do something nice for someone?
My review on his site:
Sly has various articles that pertain to blog promotions, content, optimizing your blog and strategies you can utilize. So even if you are not interested in the contest, at least go out and read his blog site. You will gain valuable information on blogging.
Good luck to everyone participating in the contest:)
Viv
Viv's tips: Ironing Board
* Try to find a desk or something that is at the same level your waist is (it must be strong and firm).
* Bend and hold on to the end of that desk, positioning your pelvic , control the arch in the lower back.
* Straighten upper back,
* Keep your head in line with shoulders, ears and chin tucked in.
* Hold it for a few minutes, then try again.
This stretch feels good, please make sure you straighten your lower back, keep your head in line with your shoulders, ears and keep you chin tucked in. Again, I will try to add pictures later to help you out.
I hope and pray this post has helped someone today.
Viv
Friday, September 21, 2007
Viv's tips: Stabilization
This tip is for stabilization. You can lay down on a exercise mat or on your bed to complete this exercise.
1). Place a pillow down for your head to rest and lay down straight. Cross your arms and bend knees with feet slightly apart.
Rock your hips backward - low back should be presses into the mat or bed. Exhale and pull in your tummy.
2). Rock your hips forward, arch your back, Inhale and let tummy swell.
Repeat steps 1 & 2 three to five times, then
3). Locate neutral pelvis.
I hope you can understand these instructions. I will work on drawing a picture and adding it to this post.
I pray and hope this helps someone today:)
Viv
Thursday, September 20, 2007
Viv's tips: Prayer Position Stretch
I promised to post a new tip today. It is called the Prayer Position Stretch. I do this several times during the day. It helps, so please try it.
1). Start by holding your hands in a prayer position.
2). Raise your arms over your head keeping your hands together in a prayer position.
3). Turn your palms outward (the front of your hands are now placed together in this position).
4). Stretch your arms downward as you separate your hands bringing your elbows down and place your hands back into the prayer position.
5). Repeat (2 to 3) two to three times.
Note: Please make sure to perform this exercise within your pain-free range of motion.
I pray and hope this information has helped someone today.
Viv
Wednesday, September 19, 2007
Hello Everyone - Keep checking my site
I am tired of this template stuff! I will be posting more tips. I have been having too much fun meeting new friends....I need to get organized and make sure I post at least one tip a day.
Again, I am sorry, please don't stop checking out my site for new tips.
I hope and pray everyone has a pain and fatigue free day:)
Viv
Monday, September 17, 2007
I am using my dog, Pal as my pic
Sunday, September 16, 2007
My Experience With Liquidity
I wanted to bring up this post again because I have read about several people who are having a difficult time with their health and energy levels. I take these organic products and they help me.
I would recommend the LiquiVida and MVM just to start feeling better. If you want to loose weight try adding the PLUS and LiquiGenic products. You don't necessarily have to visit my site, just go out and visit the Liquidity International website and read about the different organic products available.
My Experience With LIQUIDITY:
A dear friend of mine who actually saw me at my worst and worked with me during the onset of my illness found these products and decided to buy them for me to try. She purchased the following for me:
1). LiquiVida: is a power-packed liquid with a high content of organically grown Aloe Vera and a combination of rich antioxidants.
2). Mega Vitto-Mannan (MVM): The world of science has well-documented studies revealing highly oxygenated cells can better resist disease. Oxygen is essential to good health and is proven to increase energy, help the body prevent disease and better repair itself when injured.
3). Plus: is an all- natural energy and endurance formula. Synergistically formulated with 11 whole herbs (no extracts) along with soluble fiber and Chromium Picolinate, Plus promotes lean muscle mass and is designed to promote optimum health.
4). LiquiGenics: This emerges as a leader in our world-wide struggle with weight management. It creates a Thermogenic process which helps to naturally increase heat in the body, resulting in yellow fat burned as energy instead of stored as excess weight. When mixed with water, metabolism boosters are formed to initiate and aid in a more rapid weight loss. Adding LiquiGenics to good drinking water promotes proper hydration, which is critical for proper fat elimination.
This was my experience:
After one week of using these products as directed, I was able to reduce my Morphine ER dosage from (4) four times a day to twice a day. The Morphine ER only took the edge off the pain, this product actually reduced the pain level to zero with the exception of when I first wake-up and at bedtime.
* I suffered from Irritable Bowel Syndrome plus the Morphine tends to constipate you. I no longer suffer from constipation or diarrhea.
* There are some medications that cause weight gain and taking this product has allowed me to loose weight.
* While my energy level has improved and I continue to take these products. I missed a few weeks when I was visiting my sister and I could tell the difference! I will never stop using these products.
This has been my experience to date and I believe they are worth mentioning. I have joined the team as a distributor. I am no salesperson, but I want to share my experience with these products.
Special note to my dear friend Leslie:
Thank you for always thinking of me and my family and trying to help me find some type of help to alleviate the pain and fatigue I experience on a daily basis. I will never forget you and may God continue to bless you and help keep you healthy. Love your friend, Viv.
http://liquidity.myvoffice.com/vivwalters/
I pray and hope that this post has helped someone today.
Sunday, September 09, 2007
Viv's tips: This is my take on "THE BRAIN"
Your brain is a thinking organ that learns and grows by interacting with the world through perception and action. Mental stimulation improves brain function and actually protects against cognitive decline. Just like physical exercise affects us.
The human brain is able to continually adapt and rewire itself. While we grow older in age, the brain can grow new neurons. Severe mental decline is usually caused by disease, whereas most age-related losses in memory or motor skills simply result from inactivity. Also the lack of mental exercise and stimulation.
Here are some suggestions:
This is an exercise that can strengthen neural connections and even create new ones.
Switch the hand you are using to control the computer mouse. Use the hand you normally do NOT use.
What do you notice?
Is it harder to be precise and accurate with your motions?
Do you feel like you did when you were first learning to tie your shoelaces?
If you are feeling uncomfortable and awkward don’t worry, your brain is learning a new skill.
Try other neural building and strengthening exercises with everyday movements. Use your opposite hand to brush your teeth, dial the phone or operate the TV remote.
Also, it is important to challenge your brain to learn new and novel tasks, especially processes that you've never done before. Examples include checkers, chess, tai chi, yoga, or sculpture. I know our hands and fingers tend to hurt more times than often, but we should try even wiggling our fingers and toes.
Try playing bingo, it helps minimize memory loss and boost your hand-eye coordination.
Try to include 1 or more of your senses within everyday task:
--Try getting dressed with your eyes closed,
--Wash your hair with your eyes closed,
--Share a meal and use only visual cues to communicate. No talking.
Combine two senses:
--Listen to music and smell flowers,
--Tap your fingers with listening to the rain,
--Watch clouds and play with modeling clay at the same time
Break routines:
--Take a different route to the store, work, where ever you go,
--Try eating using the other hand (opposite of what you usually use),
--Try shopping at different stores, for instance, groceries stores, clothes, shoe shopping.
I suffer from brain fog and sometimes forget simple things like what a cup is named. I try not to let it get me down. I do get frustrated when I am trying to communicate and forget words or where I was going with the conversation. However, my family just tells me to not worry about it and stop being so hard on myself. So that helps me and I have to practice positive self-talk....reminding myself I am only human and that I am not the only one suffering from this. It is not the end of the world. Plus fatigue tends to affect our thought process along with certain medications.
Just keep on trucking baby....you gotta keep on trucking:)
I hope my suggestions help someone.
I pray and hope everyone has a pain and fatigue free day.
Fibro Viv
Saturday, September 08, 2007
LORD TAKE THIS PAIN AWAY
Lord Take My Pain Away
Lord take my pain away
I am begging that you set me free
I cannot take it anymore
Please take the pain away
If only I could find a way
To continue with this pain
I cannot take it anymore
Please take the pain away
I know I must continue on
For my family and my friends
I cannot take it anymore
Please take the pain away
I am grateful for my life
I know I am so blessed
Yet I want to ask again
Please take the pain away
Help me find the strength I need
For my family and my friends
I cannot take it anymore
Please take the pain away
Viviana Walters
Copyright ©2007 Viviana Walters
By Fibro Viv
Copyright FibroViv @http://fibroviv.blogspot.com/
NOTE: I hope and pray someone can understand the pain I was in and how I felt. I know we all go through this. It just helps me to share and pray that it helps someone out there!:)
Tuesday, September 04, 2007
Viv's tips: Shoulder Exercises
While laying down on your bed:
1). Begin with shoulders relaxed,
2). Pinch shoulders upward toward your ears (shrug them up),
3). Repeat this in sets of 3 or 4 about 2 or 3 times.
4). Try doing this throughout the day.
NOTE: There should be some tension release during this process. You can also do this standing up straight or sitting up straight.
SCAPULAR RETRACTION
(Shoulder blade squeeze)
While standing up straight do the following:
1). Stand with your arms on your side,
2). Pinch shoulder blades together (squeeze),
3). Repeat this in sets of 3 or 4 about 2 or 3 times.
4). Try doing this throughout the day, if possible.
NOTE: There should be some tension release during the process. You can also do this standing up straight or sitting up straight.
I hope and pray these tips are helping someone today:)
FibroViv
Monday, September 03, 2007
Viv's tips: Form to use to Track Your Pain
DAILY JOURNAL FOR TRACKING YOUR PAIN
Full Name _______________
Date ________
What time of the day do you feel your pain?
____When I wake up in the morning ____Throughout the day
____At night ____All of the above ____Other
COMMENTS:
________________________________________________________
________________________________________________________
________________________________________________________
What activities caused your pain?
_____Walking_____Bending_______Going up and down stairs
_____Running_____Taking a bath_____Stretching____Exercise
_____Completing simple household chores____Other
COMMENTS:
________________________________________________________
________________________________________________________
________________________________________________________
Where did you feel the pain?
___Hands ___Fingers___Arms___Shoulders___Neck___Waist
___Abdomen____Ribcage___Legs___Feet___Toes___Thighs
___Knees____Head___Breasts___Hips____Ankles____Calf
___Other
COMMENTS:
________________________________________________________
________________________________________________________
________________________________________________________
Do you get any burning sensations?
___Yes___No___Sometimes
If so, Where?
___Hands ___Fingers___Arms___Shoulders___Neck___Waist
___Abdomen____Ribcage___Legs___Feet___Toes___Thighs
___Knees____Head___Breasts___Hips____Ankles____Calf
___Other
COMMENTS:
________________________________________________________
________________________________________________________
________________________________________________________
________________________________________________________
________________________________________________________
Do you get any tingling or numbness? If so, Where?
___Hands ___Fingers___Arms___Shoulders___Neck___Waist
___Abdomen____Ribcage___Legs___Feet___Toes___Thighs
___Knees____Head___Breasts___Hips____Ankles____Calf
___Other
Rate the level of pain: (1=mild, 5=moderate, 10=severe)
___1 ____5 ____10 _____Other
COMMENTS:
_______________________________________________________
_______________________________________________________
_______________________________________________________
What medication are you taking to treat your pain?
Medication/Dosage_________________________________________
_______________________________________________________
_______________________________________________________
When Taken ______AM/PM
Relief? ____Yes____No____Some
How long did the medication take before it worked?
___Minutes___Hour _____Hours_____Not at all
COMMENTS:
_______________________________________________________
_______________________________________________________
_______________________________________________________
I pray and hope this form helps out someone.
Take care,
FibroViv
Saturday, September 01, 2007
Read about Trigger Point Therapy Workbook
Here is a book of special interest:
Davies & Clair, (2001)
The Trigger Point Therapy Workbook, Your Self-Treatment Guide for Pain Relief, New Harbinger Publications, Inc. 5674 Shattuck Avenue, Oakland, CA 94609
I hope this helps someone.
FibroViv
Viv's tips: Hot Nap
HOT NAP (HOT TUB):
Take a 30 minute hot bath, when getting out of the tub, wrap up in a warm towel and go to bed and nap.
I do this a lot and it helps me. I hope it helps you:)
FibroViv
Friday, August 31, 2007
Viv's tips: Form to use when you visit a new doctor
DATE:_________________
PCP____________________Referred by___________________
Describe your problem and symptoms:
_________________________________________________________
_________________________________________________________
_________________________________________________________
_________________________________________________________
Personal Medical History
___diabetes _________average diabetic reading _______Heart trouble
___asthma _________ Hay Fever ________Shortness of breath
___Bi-Polar _________ Anxiety ________ Trouble Sleeping
___Wear eyeglasses _______High Blood Pressure _______Broken bones
Family Medical History
___diabetes ______Heart trouble _______asthma_____Hay Fever
_____Shortness of breath ______High Blood Pressure
Current Medications
Please list all medications you are currently taking along with the dosage and time:
_________________________________________________________
_________________________________________________________
_________________________________________________________
_________________________________________________________
_________________________________________________________
Is there anything else I should be aware of as your new Physician?
_________________________________________________________
_________________________________________________________
_________________________________________________________
What other Physician's are you under the care of?
_________________________________________________________
_________________________________________________________
_________________________________________________________
I hope and pray this form helps someone today.
FibroViv
Wednesday, August 29, 2007
Coping & Treatment Strategies for ME/FMS
1). Eliminate your particular physical and psychological stress factors, whether they are physical or psychological.
2). Try not to misuse your body on a tolerable day. Learn to pace yourself.
3). Figure out which forms of exercise don’t provoke your symptoms or make you feel worse. Prevent muscles from weakening by doing regular activities such as stretching and walking.
4). Try at least two or three of the anti-depressant drugs available in the market today. Educate yourself on the ramifications of taking these medications and talk to your doctor.
These drugs act upon different neurotransmitter receptors in the body, what works for you may not work for someone else. You should try the drug in low doses and give it at least three weeks to determine whether it is working. It is crucial that you don't over-exert yourself.
The main thing to remember is that FMS and CFS are NOT stress disorders. We have generalized pain, fatigue, stiffness and morning fatigue, along with other symptoms. Pain is not the only symptom which is prominent in patients with this disorder.
Yes, most of us get worse after any form of physical or psychological stress. The worsening of symptoms typically occurs 24 to 48 hours after any sudden form of exertion. It is so important that doctors and the medical community realize that the clinical features they see are not always the most important thing.
It really disturbs me that many doctors and journals (literature), reports have equated FMS/CFS (ME/CFS) with labels of depression-like disorders. Those terms are used too commonly with too little after thought.
Sure, patients may fight periods of depression or feel down in the dumps, but that is not to say that FMS or CFS is just another form of depression. If you suffer from depression, you should not be made to feel badly about it by either your family or the medical community. The main thing is to seek help and don't let anyone blame you for feeling blue.
This disorder can occur at any age, and it is historically a problem for young people who have this disorder to be told that they have some emotional thing going on.
I ask that you seek help and don’t let anyone blame you for feeling blue.
I hope and pray this information has helped someone today.
Fibro Viv
Monday, August 27, 2007
Viv's tips: Take control of your pain
1). Decrease Infections
Our immune systems may sometimes be worn down due to sleep deprivation. Common colds and infections are harder on people with chronic illnesses. These new infections tend to place additional stress on our immune system, then it causes our symptoms to get worse. Practicing good hygiene, a healthy diet, and pacing ourselves to minimize our chances of developing additional medical problems.
2). Breathing Correctly
Breathing shallow may cause you to starve your body and its muscles of oxygen. Many articles have been written noting the lack of oxygen actually caused tender points and increased pain associated with fibromyalgia and fatigue. When you breathe your abdomen should expand while inhaling, and contract while exhaling.
3). Maintain Good Posture
Poor posture can cause muscle stiffness and muscle pain. Checking your posture during your day while sitting, standing or walking will help reduce pain and relax muscles. No slouching, shoulders rolled forward, or head forward helps maintain good posture.
4). Lifestyle Changes Can Help
Unfortunately, we have to make lifestyle changes due to our health challenges and disorders. We are unable to continue with our usual day-to-day activities and need to change and prioritize them.
5). Decreasing your Symptoms:
a. Do not stay up late or get up too early. Go to bed and wake up at the same time if possible.
b. Pace yourself and try not to use up all of your energy. Pacing is very important.
c. Drink plenty of water however, try to slow down your consumption prior to bedtime.
d. Eliminate or cut down alcohol and caffeine drinks.
e. PACE...PACE....PACE. Please PACE yourself.
I pray and hope you have a pain and fatigue free day:)
FibroViv
Everything on this site is copyright FibroViv
Viv's tips: Key factors to a "Flare Up Plan"
1). Breathe. Use relaxation techniques. Relaxation response throughout the day will keep the "snow ball" effect from occurring.
2). Posture. Interrupt prolonged positions and change positions every hour. You must take charge of this - set an alarm if needed. Always keep towels, pillows or posture supports handy. Alignment decreases the effort muscles exert.
3). Modalities. Use ice, heat, TENS or tennis balls for self-massage. There are many ways to perform each of these. Think about what your body needs this time.
4). Stretching. Perform your stretching program more gently. Breathe into each movement fully. Joints and soft-tissue need the movement, but since you are likely to lose motion during a flare up, stretch should be in a fairly pain free range.
5). Recovery. Recovery is necessary. Plan to rest muscles more and get into positions that let the muscles relax. These are great times to use modalities.
6). Confidence. Everyone has flare-ups. The more experience you get in handling them the shorter they will last. You many need to ask for additional help. You will definitely have to prioritize which activities you HAVE to do.
7). Review. If you can figure out the cause of the flare up you are a genius. BE KIND TO YOURSELF, YOU ARE LEARNING.
Take care and I hope and pray you have a pain and fatigue free day!:)
FibroViv
Everything on this site is copyright Viv Walters
Thursday, August 23, 2007
Viv's tips: Fatigue Flare-up Management
* Increase frequency of spine towels (will note the use of spine towels below)
* Always use posture supports when lying or sitting, especially arm supports.
* Decrease intensity of exercise and activities--ENERGY CONSERVATION.
SPINE TOWEL SET-UP
1). On your bed or a flat surface, place a small folded towel or pillow down.
2). Leave about 4 to 5 inches of space, then horizontally place a small towel rolled up at top of spine (right at shoulder level).
3). Right under the towel you just placed according to number 2 above, roll up a towel and place it vertically down the middle of the spine.
4). Now place a pillow right where your bottom will be when you lay down.
5). Sorry, I missed this one....lay down on the set-up you did, 1-4..for about 10 minutes.
NOTE: Do this for at least 10 minutes. You can also change it to where you bend your knees and place the pillows under your knees.
I do this and it helps me, especially when I am very fatigued.
I hope and pray this helps you and others.
Fibro Viv
Everything on this site is copyright Viv Walters
Wednesday, August 22, 2007
Viv's tips: Doorway Chest Stretch
DOORWAY CHEST STRETCH
1). Find a doorway entrance that is open, place both arms on doorway at shoulder level with palms flat against the doorway.
2). Slowly walk feet through doorway until a mild stretch is felt in your chest and shoulders.
3). Gently bring your head back (chin tuck).
4). Hold 10 to 30 seconds.
Note: You can do it with your arms at shoulder level, stretch arms above the head separated with one arm on each side, and with arms extended below the waist level.
IMPORTANT: DO NOT LEAN INTO THE DOOR. WALK FEET THROUGH THE DOOR.
I hope and pray this helps you and you have a pain and fatigue free day!
Fibro Viv
Everything on this site is copyright Viv Walters
Viv's tips: Upper Back Extension
UPPER BACK EXTENSION
1). Stand facing a wall (as close as possible).
2). Stabilize lower back by tightening abdominal (stomach) muscles.
3). Place your hands up the wall to stretch shoulders and upper back.
4). Hold it for 5 to 10 seconds and slowly lower your arms.
NOTE: Hips should be toward the wall, not outward.
I pray and hope this helps you and that you have a pain and fatigue free day.
Fibro Viv
Everything on this site is copyright Viv Walters
Viv's tips: Shoulder Blade Positioning
SHOULDER BLADE POSITIONING
1). While standing straight shoulders should be down.
2). Flattened against your back and placing your palms toward your body.
3). Rotate your shoulder blades back and forth.
The muscle you use is located under your arm pit--relax your chest and upper shoulder muscles.
Try doing this at least once during the day. It will help.
THIS IS ANOTHER TYPE OF SHOULDER BLADE SQUEEZE:
1). Clasp hands behind head or beside head,
2). Chin tuck,
3). Pinch shoulder blades together,
4). Hold it there for about 3 to 5 seconds, then relax.
Perform two to three times.
I pray and hope you have a pain and fatigue free day.
Fibro Viv
Everything on this site is copyright Viv Walters
Viv's tips: Posture Scans
I am finally able to update my blog site. I will start adding daily tips and things to do to help you out. I suggest you print these tips and place them in a notebook for easy reach and a reminder to do them daily. Here goes:
INTERRUPT POSITIONS REGULARLY WITH POSTURE SCANS
POSTURE SCANS AS FOLLOWS:
a. Where are your feet when you are sitting...make sure they are under your knees with legs relaxed.
b. No slumping while sitting...make sure your shoulders are not rounded, your back is straight and you are sitting on an even surface.
c. Are your knees loose?....relax your legs.
d. Where is your head while sitting?....Lift collar bone, inhale, exhale but maintain collar bone position. Sit up straight.
Try doing this and checking your posture during the day. It really helps.
I pray and hope these tips help everyone. I also pray and hope you have a pain and fatigue free day!
Fibro Viv
Everything on this site is copyright Viv Walters
Wednesday, August 15, 2007
Update on Fibro Viv's Forum
The only people to sign up as members were advertising bad, nasty sites instead of sharing information that would help people. I am so sorry. I will continue on this blog as long as I do not get any bad nasty posts.
God Bless everyone and I pray and hope you have a pain free day!
Fibro Viv
Saturday, July 28, 2007
Update from Fibro Viv
I have been pretty busy taking care of my husband and family. I have also been trying to recover from all the extra activities I have been up to. It takes a lot out of a person.
I just wanted you to know that I have created a Forum, it is called Fibro Viv's Forum. I have added different subject matters. Please join the forum and enjoy posting your comments.
I am currently working on making some e-books with helpful tips. I am also working on creating brochures, worksheets, journals, etc.
So go check it out!
I hope and pray you have a pain free day!
Fibro Viv
Saturday, July 21, 2007
Thought for the Day and Thinking of Others
May you have a pain and fatigue free day!
Wednesday, June 20, 2007
How to make your own Heat/Cold Therapy Pads
One of the things I learned during my Pain Management sessions was "How to make your own heat and cold therapy pads."
I know there are many of us that cannot work or have limited budgets, so here is this tip:
Ingredients:
* Thick material (this project calls for 18",but you can make the heating pad any size you want.
* Sewing machine or needle and thread
* Flax seed or wheat
* Essential oil (if you want to add it for aromatherapy), not required.
Directions:
Buy or use strong material like cotton, strong silk or cotton woven material, or canvas. Make sure the material has no give to it. You do not want it to stretch. Please remember it needs to be real thick so when the wheat is heated (and it gets pretty hot) that you don't burn yourself.
1). Cut a square about 18" each side and fold it in half so it's inside out. It will be oblong shape.
2). Stitch down one short side and the long side. A sewing machine works best as you need short stitches close together, so the wheat doesn't come out.
3). If you stitch by hand go over it again to make sure the stitches are tight.
4). Turn it the right way in so the seam is on the inside.
5). Use the Flax seed or Wheat, it needs to be the whole kernel.
6). You should fill the bag about 1/2 way, then stitch the one side that is left, sealing it tight.
7). If you decide to use essential oils, sprinkle on the material for aromatherapy.
8). You will need to microwave it about two minutes. I have had a couple of microwaves, and they seem to heat differently. So please test it out a few minutes at a time to see how much time you need it in your microwave. Just be very careful not to overheat.
It can also be placed in the refrigerator or freezer if the cold therapy is better for you. I personally prefer heat.
This step is not necessary, but you might want to try it:
Try to divide the bag into sections. Maybe in 4- put in 1/4 of your seeds then stitch the bag 1/4 of the way up, drop in another 1/4 of the seeds and stitch those in, repeating for the rest, so you will have 4 compartments full of seeds, instead of one big one. This is keep your seeds fairly distributed throughout your hand made heating pad.
You can try making these in different sizes and shapes. You might want to make a horseshoe shape for your neck, or a small pillow to hold while you sleep, big square for your back, etc. The key is to make sure you have enough seeds to fill 1/2 of the bag. It takes about 1lb for an 18 inch bag.
Why spend money buying these products, when you can make them yourself. They also make nice gifts. I hope you enjoy yours.
I hope and pray this information helps someone today! Have a pain and fatigue free day:)
Fibro Viv