Don't use your energy to worry, use it to believe in yourself!

Hi Everyone!

Today I want to focus on how to manage the energy we have for the day. I know I don't always wake up full of energy but I try to find ways to energize myself.

Those of us that suffer from chronic fatigue find it difficult to feel energized. If you didn't sleep well last night, don't worry you can still find a way to feel energized. Try the following:

1.  Sit up, take a couple of deep breaths and close your eyes. Just free yourself of any worries.

2.  Try to complete a couple of soft easy stretches; remember the prayer stretch I noted early in my site? Try it.

3.  Take a nice long shower or bath and pamper yourself. Turn on some music and just let yourself enjoy the rhythm.

4.  Be sure to eat breakfast, it is afterall the most important meal of the day.

5.  Now consider fueling your mind by listening to a motivational audio or inspirational music.

6.  Try to complete some simple yoga stretches, an exercise routine, or walk for a short distance. We have to start somewhere. Remember to pace yourself.

7.  Stay connected to people, we all need that human interaction. Take advantage of your support systems and don't be shy about asking for help.

Don't get discouraged if you are only able to get up and shower for the day. I know some of us are unable to do much more. It depends on where you are physically and emotionally. Based on my own experience, I have come a long way. I remember when I could barely lift my head from my pillow. Please don't get discouraged and try to remain positive.

Decide what's the most important thing you can do today based upon your life goals. Then do it.

Just do whatever it takes to remain upbeat, friendly, and enthusiastic. Keep that momentum going and you will find that it keeps you energized.

Today's Tip: If you are experiencing a high level of pain and fatigue, take a warm bath, set up your bed with pillows under your head, knees, feet, and both sides of your arms. Or set up some pillows on your recliner and just relax. If you had a sleepless night, consider trying today's tip. This always worked for me when I was very fatigue.

Pace yourself.

I hope and pray everyone has a day free of pain and fatigue.

With love and hope,

Fibro Viv


P.S. I'm working on answering your email questions. Hang in there, I'm here to help. You are also helping me by staying in touch and asking questions. I truly enjoy helping others. God Bless!

Most days I find myself...

Hi Everyone!

Here is a little something I posted on another website. Share your journey with the rest of us. I truly enjoy sharing my journey and assisting others when possible. Just know that you are not alone. God Bless

Most days I find myself...

I spend a great amount of time dealing with everyday chores and activities. I always make an effort to complete gentle stretches each morning. I enjoy simple yoga moves, swimming and spending time with my family (includes my dogs).

Given what I know now, I would recommend others...

My only recommendation is that people educate themselves and seek support from a variety of places. Learn to reach out, share your journey, and remain open-minded. Don't be so hard on yourself and know that you are not alone. We all have different symptoms, levels of pain and fatigue. Our lives are enriched when we reach out, listen, touch, and share.

My life has changed in this way...

I have learned to accept the new me and how to manage my pain, fatigue, and energy level. Pacing wasn't part of my vocabulary but it certainly has forced its way into my life. I have learned to listen to my body and manage my stubborn mind in the process. I have also learned to forgive myself for not being able to complete certain tasks, chores, etc. Pacing is an ongoing challenge that will always be part of my life. The key is to fill your life with experiences, not things, and to have stories to tell, not stuff to show.

When I'm having a bad day, I like to...

On a bad day I enjoy long hot baths, meditating, listening to music, binge watching television series and focusing on my blessings. Resting while listening to music or getting a massage while listening to music can be very calming and uplifting.

I hope and pray you have a day free of pain and fatigue.

P.S. You can continue to send me your questions via email. I promise I will respond. God Bless

What You Can't Change

Hello Everyone,

I hope your new year is off to a great start. I'm looking forward to 2018 and everything it has to offer. My goal is to get back on track writing posts for this blog site. I will be including some quotes that I believe will assist all of us as we work on taking control of our health.

Here goes:

"You can't change how people feel about you, so don't try. Just live your life and be happy".


I have been reading some comments made on a different site and it saddens me when people tend to believe their self-worth is based on what others think or say. Please don't do it, I know it is a trap we all fall into at some point in our life. Try to focus on your own happiness and health and stay positive. We all have our strengths and weaknesses and that is what makes us special. So live your life and be happy.

Today's Tip: When you wake up each morning concentrate on your mood and what you want to accomplish. Imagine and picture yourself achieving your goals.

Start the day off:

1. Completing soft stretches while still in bed
2. Pick up that journal and use it
3. Write down simple bullet points (nothing to elaborate)
4. Take a warm bath and pamper yourself
5. Try to tackle one of those short term goals
6. Pace yourself

Things you might include in your journal:

• How you feel (pain and fatigue levels)
• Medications taken
• Simple checklist indicating you are eating regularly
• Planned appointments
• Goals (daily)

Please remember that you are in control of your health and happiness. You control your own thoughts and emotions. Take baby steps and try to stay motivated. I'm here to cheer you on.

I hope and pray you experience a pain and fatigue free day.

With sincere wishes,

Fibro Viv

Be the person who cares

Dealing with Light Sensitivity

Hi Everyone,

Today I want to discuss how to deal with light sensitivity. Our home and work environment can mess with our sensitivities to light, sound, and touch. Flourescent lighing can trigger headaches, dizzy spells, and vision problems. There are days when my sensitivity to light, sound, and touch are magnified to the point of not being able to deal with anything. The next thing I know, I am experiencing a full blown migraine. Not good.

I retreat to my bedroom, turn down the lights (sometimes turn them off completely), turn on some soft music and lay down to rest. I lay on my back with pillows placed under my head, each side of my arms, and under my bent knees. I enjoy listening to music, or simply meditate with my eyes closed. 

Sometimes it is difficult to deal with normal or average lights and sounds. Hypersensitivity seems to occur on its own, with no headache. These sensitivities can interfere with your work and daily activities. Being unable to tolerate average levels of light or sound can make it difficult to go outside, participate in social events, or do your job. I know it is related to certain health conditions that should be addressed. So, by all means talk to your healthcare provider about these issues. Yet another reason to journal because it will help you understand what triggers these episodes. Here are my tips:

- Journal (assists you in figuring out what triggers these sensitivities)
- Darken rooms 
- Wear earplugs (to this day, I wear one earplug at the movie theater)
- Wear sunglasses
- Take breaks away from settings you find difficult because of light or noise
- Lay down and rest with your eyes closed
- Get the right amount of sleep (we all have different sleep requirements)
- Practice deep breathing exercises
- Practice relaxation exercises (meditation)
- Allow yourself some "me" time
- Seek out support (family, friends, doctors, Internet acquaintances)

My initial experience was devasting and caused me to become anti-social. I finally decided that blogging, researching, and reading about other people experiencing these symptoms made me feel better about myself. Yes, I was blessed to have a partner that loved and supported me. He was there through good times and bad times. Somehow it seemed easier to deal with these issues when I shared my experience with like individuals. Do what makes sense to you and your physical and mental health.

My thoughts: Stay connected to your family and friends. Seek help and learn to communicate your thoughts and feelings.

I hope and pray you have a day free of pain and fatigue.

Affirm Youself Often

Hi Everyone,

We must affirm ourselves often because we deserve it, giving ourselves compliments will provide a boost to our self-confidence. In the process we must also affirm others because helping others feel good about themselves makes us feel better about ourselves too. The goal is to accept yourself thereby allowing you to open up to the people around you. When we feel pain and fatigue whether it be emotionally or physically the feelings of sadness and anger can cause someone to lose determination or confidence. Affirm Yourself Often. Examples of self-affirmation:

I AM - is a statement of who you are

I CAN - is a statement of your potential

I WILL - is a statement of positive change in your life and what you want to happen moving forward.

Create your own or consider the ones I have written below:

- I am in control of my life and I am willing to take that first step to control my pain and fatigue.

- I can be positive, I can plan to become more active and I can succeed.

- I will focus on remaining positive and I will decrease my pain and fatigue.

Yesterday I wrote that I wanted to blog and share my emotional and physical journey. I think I will separate my relationship grief and possibly discuss how we start to consider building new relationships. I may create a new blog on relationships. So this site will continue focusing on how I deal with fibromyalgia and chronic fatigue. Let me know what you think.

Part of chronic illness includes a loss of self, social life, money. etc. and our definition of normacy changes. You may be in the initial phase of realizing you have a chronic illness. Where do you stand? Do you want to learn how to take control of your pain and fatigue? I hope so. Are you starting your journey, progressing, or at a stand still?

Personally, I got lazy. Oh I still continued to stretch and eat the right foods, but I did not make an effort to add to my routine. The only reason I continued to stretch was because I trained myself to stretch before getting out of bed and it felt good. I figured out certain foods did not agree with my body and just changed my food choices. I worked on improving my health and eventually my habits changed. Then life changed, I lost Jerry and then I lost interest in my own emotional and physical health and happiness. I'm sharing because I want someone to learn from my mistakes. Don't just survive, I know you are tired, in pain, fatigued, and discouraged. Each time you wake up, you have another chance to make things better, to improve upon your emotional and physical health. You have a choice.

Well you are probably bored so let me end this post with my thoughts for the day:

Take control of your life. Start with one change, and when it feels like part of your usual routine, add another. DO NOT STOP even when you feel pain and fatigue. Once that change feels like second nature, add another, and so on. Don't just survive, make new plans and goals. Affirm Yourself Often.


I hope and pray you have a day free of pain and fatigue.

P.S. Completed my yoga stretches and exercise routine!

A place to buy Ice Pack Wraps

Hi Everyone,

I found a site that sells ice packs. Get your gel packs, cold therapy ice packs and heating pads to treat your leg pain, elbow joint pain, hip pain, knee pain, foot pain, or arthritis pain! I have used cold therapy ice packs and heating pads to treat my pain. They were first introduced to me during my medical rehabilitation for Fibromyalgia and Chronic Fatigue. Here is the link and a coupon code that is available until May 9, 2013:

http://www.pjtra.com/t/RT9GSkVFSD9LS0lGST9GQ0hC
10% off your IceWraps.net purchase with coupon code SPRING10! Expires 5/9/13. 

I hope and pray you feel good today. Try the cold and hot therapy options. I personally like the hot therapy option.

Prayer for Jerry

God our Father,
Your power brings us to birth,
Your providence guides our lives,
and by Your command we return to dust.

Lord, those who die still live in Your presence,
their lives change but do not end.
I pray in hope for my husband Jerry,
relatives and friends,
and for all the dead known to You alone.

In company with Christ,
Who died and now lives,
may they rejoice in Your kingdom,
where all our tears are wiped away.
Unite us together again in one family,
to sing Your praise forever and ever.

Amen.


I pray and hope everyone experiences a day without fatigue and pain.

The Start of a New Year 2013

Hello Everyone,

I am starting off the new year without my soul mate, Jerry. I miss him so much and I hope that I can move forward without always feeling so sad. The fatigue and pain I have felt on a daily basis is nothing when compared to the sadness I feel because of the loss of my husband. It helps me to write to him everyday. Jerry completed me and made me want to be a better person. I will never forget Jerry's courage, compassion for others, wisdom, and infinite love. He made a difference in my life. I thank him for the beautiful, blessed journey in life we shared.

On another note, I would like to remind everyone to update their medication list and try to keep a daily journal. The journal does not have to be fancy. Write down your symptoms, thoughts and find a way to measure your pain. After a few weeks or months you can review and re-examine your symptoms, thoughts and pain level. I have been able to monitor activities, medications and found ways to improve my health and quality of life.

The most critical part of learning to live well with fibromyalgia and chronic fatigue is making lifestyle adjustments. We cannot change the past or our genetic makeup. However, there may be aspects of our lives that we can change or ‘adjust’ in order to improve our health and quality of life.

Also try to simplify and balance your life.

Today’s message: Never take life for granted, cherish the people you love and take control of your health.

Meanwhile I hope and pray everyone has a wonderful new year filled with love, good health and happiness.

With Warm Regards,

Viv

Requesting Prayers for Jerry

Hello Everyone,


My husband is in ICU at Brackenridge Hospital. He needs your prayers and strength. He was placed in an induced coma and now is in the awakening stage. We are waiting to see if he responds to us. PLEASE PRAY for him, I love my husband and want him to recover and come back home. I would die for him, he is a good person with a kind heart. He is a husband, Father, Grandfather, Son-in-Law, Uncle, Brother-in-law, and friend to many. PLEASE PRAY FOR HIM.


Sincerely,

Viviana

P.S. Tomorrow I will post more information with progress reports. Please keep him in your prayers.

Requesting Prayers for Family

Hi Everyone!

I hope everyone is having a pain and fatigue free day.  I have been busy trying to keep up with my Hubby and Mother. They are both in the hospital and could use the power of prayer.

My Mother fell down in May and later somehow broke her pelvis bone. She had surgery and is currently trying to recover. The future may include a Rehabilitation Facility and she is not looking forward to it. The family is collectively trying to find the proper facility and continue visitations to the hospital. We do not want her to feel lonely at the hospital.

My hubby still suffers from his chronic breathing challenges. He some how twisted his arm today and is experiencing extreme pain.  Poor baby:( He has been in the hospital since June 2, 2012.

There is something positive, they are both currently residing within the same hospital, just different floors. I travel from the 4th floor (Jerry's room) to the 6th floor (Mom's room).

I am requesting and would appreciate any prayers you guys can send our way.

Thank You....going to bed now.

I pray and hope everyone has a pain and fatigue free day.

Hi Everyone,

I once again am starting to feel like a hypochondriac and becoming sensitive to odors, bright lights, and loud noises. While there are many situations that can contribute to my fibromyalgia symptoms, the weather, quality of my sleep, and over-exertion have contributed to my flare-up.

I recently experienced a bit of nausea preceded by vomiting. It felt like the nausea was never going to stop. The nurse was concerned about dehydration and I was concerned about not being able to hold down any type of medication. I felt like my stomach was never going to be the same. I was worried that the nausea was an indication of something more serious. I am finally feeling normal again. My eating habits have changed, I am now eating several small meals (snacks) throughout the day. My water intake has not improved however, I am slowly getting back to drinking the recommended amounts of water.

My current goal includes decreased visits to the doctor, learning to control recent spikes in my blood sugar levels, choosing healthier foods and increasing exercise without fatigue and pain. It felt like I was doing so well and all of the sudden I am back to experiencing symptoms! No fun!

Read my tips on dealing with nausea:

Instinctively after experiencing nausea we tend to temporarily discontinue medications (which can irritate the stomach and make vomiting worse), avoid solids, and liquids. To prevent nausea from developing, try the following:

• Eat small meals throughout the day instead of three large meals.
• Eat slowly.
• Consume foods that are cold or room temperature to avoid nausea from the smell of hot or warm foods.
• Avoid hard-to-digest foods.
• Rest after eating with your head elevated about 12 inches above your feet.
• Drink liquids between meals instead of during meals.
• Drink at least six to eight 8-ounce glasses of water a day to prevent dehydration.
• Try to eat when you feel less nauseated.

If you begin to feel nauseated, try drinking small amounts of clear, sweetened liquids such as soda or fruit juices, avoiding the juices that are acidic (orange or grapefruit).

As we all know by now, a person can't get over fibromyalgia and we will always have to remain mindful of what may trigger symptoms. 

Unfortunately, I am yet again reminded of my illness. I hope and pray my journey allows you to know....you are not alone.

 

Viv's tip: Acknowledge your situation, accept yourself (you are okay), and remain optimistic.

Pain Management - Alternative Tools

Hello Everyone,

There are a variety of tools available to manage pain. One option is the use of a TENS UNIT.  T.E.N. unit stands for Transcutaneous Electrical Nerve Stimulation. While on medical leave I attended a physical rehabilitation class.  The Physical Therapist introduced the use of a tens unit/muscle stimulator. The point of using a tens unit is to alleviate pain by sending mild electrical pulse through the skin to stimulate the nerves beneath my skin. The unit is lightweight and easy to carry. I was able to carry the unit attached to my belt, jeans, or sweater. These portable units are very convenient and an effective way of managing pain. The units are battery operated and rechargeable.

While these units are not a permanent solution to managing chronic pain, they can be incorporated with other pain management tools. The muscle stimulator can be customized in accordance at an electrical level acceptable to each individual. The therapist will set the unit at a low level, later increasing the unit to an appropriate level of stimulation. Chronic and acute radiating pain relief is managed without the use of drugs and is used in parallel with physical therapy that includes yoga, gentle stretching, later using hot and cold compression pads.

The tens unit is prescribed by a pain management doctor, chiropractor, or physical therapist. A physical or occupational therapist or nurse explains the proper use (when and where to place pads). The device includes electrode pads, electrode conductive preparation spray (one can use alcohol wipes), a battery, and battery charger. The unit and accessories are available via the internet or at a medical supply retail store. Quality electrode pads contain non-irritating gels that are sticky providing comfort, reusability, and performance. 

A unit, LG-TEC Dual Combo TENS Unit /and or Muscle Stimulator is an alternative, safe, non-addictive, and effective treatment for chronic pain. Talk to your doctor about this form of managing your pain.

Visit LGMedSupply Online and read their customer blog to get additional information.

I pray and hope everyone has a pain and fatigue free day.

Writing a 'Visual Journal' for Stress Relief and Relaxation

Writing a 'Visual Journal' for Stress Relief and Relaxation

All aboard

Once Oprah started making vision boards, and adopted the concept as one of her favorites, visualization techniques done via collecting pictures really went mainstream. But long before that, the idea went from woman to woman, friend to friend, as a woman in need would use a vision board to construction a clear picture of her life and goals, and share the method with her best friend.

(Saying ‘woman’ here doesn’t mean that men cannot benefit from practicing visualization techniques; it’s just that they aren’t quite so ready to connect with their emotional side in such a forthright and craft-oriented way.)

However, anyone in need of stress relief can benefit, particularly those with CFIDS or FMS, the majority of whom find that stress is directly linked with and is perpetuated by their symptoms in a vicious cycle. I’m explaining Visual Journals, rather than boards for what may or may not be obvious reasons. First off all, vision boards don’t always work for everyone. Some may very much want to try it, but are frustrated by the process of searching for meaningful pictures that are not of themselves (one of the recommended vision-board methods). Some will enjoy the process of destruction (i.e. cutting and extracting clips) and reappropriating materials in a creative way. Others will stress over damaging their beloved glossies. 

Writing a Visual Journal

Anyone who has attempted to keep a diary knows that regular journal writing can be a very calming, cathartic practice. However, some people who try to begin journals soon stop writing.  They stop and start again like someone struggling with smoking relapse prevention, because they are either too busy or can’t think of anything to say as they write.

People usually just write words in a journal, and often aren’t moved by reading their own words over again. Moreover, they very quickly forget what it was they wrote. It’s a fact that people retain learning they obtained visually at a much higher level than that which they obtained via hearing. Therefore, adding visual elements to your journal can not only be enjoyable, but can help to anchor your thoughts to a particular image. Furthermore, the method described below can help to trigger personal exploration.

Writing Your First Entry

For your first attempt, start your journal entry with an old picture of yourself. Maybe one that you didn’t think was so great, but other people really liked. You may or may not decide to stick it into your journal, but what you should do is write 200-300 words about that picture: how old you were, where you were, who took it, why you don’t like it, why other people do… and anything else you can think of.  Instead of opening your journal and saying to yourself, ‘I can’t think of what to write today,’ choose an image to begin with– ask your friends for pictures, use old travel photos, pictures of pets, brochures, check the extra leaflets that are laying in the junk drawer, take a picture with your phone camera, or even draw it yourself (stick figures allowed).  You probably have a box of old pictures somewhere you have no idea what to do with– pick from those, too. Write about what each image reminds you of, why you chose that picture, who else would appreciate that picture and why. Your imagination will lead you on from there, and soon you will be writing away with yourself, as you go from idea to idea. 

Case Study

Darling is a chef in Washington State– yes that’s her real name, Darling (she explains  that her parents were the hippyish, sensitive type). She collects pictures she runs across to write about them later.  She finds that she is a chef exactly for that reason, because the images of food, not to mention their smells and their textures, link her to memories of the past and help her to weave together a feeling of well-being.

Over time, that’s what your Visual Journal can do for you, so it becomes a sort of visual path, anchoring you to memories and personal exploration that you have done.  Even when you think you are too busy or life is too frenetic to sit down and write, taking five to ten minutes while riding on the bus, waiting to pick up your children from school, or even five minutes waiting in line at the post office is enough.

Words of Advice

If you are ever at a loss for image ideas, remember that a recent study from MIT found that people recall images in warm colors or images with faces in them significantly more easily than those of landscapes. When looking for images, choose ones with human faces or warm colors in them, rather than pretty but empty landscapes.

Be patient with yourself, whether you decide to do this or create a vision board.  Maybe your first entry is just, “This is when I felt better than I do now.”  That’s fine.  Just work from that and keep writing.  Eventually, the gates will open, ideas will flow, and the deeper meanings behind the images you are choosing will start to come through.  The important thing is just the practice and weaving together your own personal tapestry of well-being.

This post was written by Rebecca Kay. Thank you Rebecca!

I pray and hope everyone has a pain and fatigue free day.

Starting the New Year with Fatigue?

Hello Everyone,

I have not posted updates for some time now. One of my new goals includes taking time to post on my blog site.

Did you start the new year with deep exhaustion? You know that exhaustion that is steady or waxes and wanes for months. This isn't everyday tiredness, it's profound fatigue that severely impacts your life. And nothing seems to help-not sleep, stress management or a vacation. This seems to be a diagnosis dilemma for some doctors. In order to receive a CFS diagnosis, you need that degree of fatigue plus four of the following symptoms for at least six months: substantial difficulties with memory or concentration, severe headaches, muscle and joint pain, chronic sore throat, feeling wiped out after even slight exertion, unrefreshing sleep and tender lymph nodes. In the beginning I even experienced trouble speaking, dizziness and irritable-bowel issues. The severity of the symptoms varies from person to person, although even those with mild CFS can struggle with normal activities like walking up a flight of stairs or reading a novel and even feel worse after making an effort.

Some people feel heavily sedated (without taking medications) and are housebound for weeks, months, and years. I know you have heard the term brain fog...how about brain mud! The hardest part is justifying  why we can't just snap out of it with a little rest or sleep. There is a difference between being tired and feeling exhausted, it is like you are one step away from feeling comatose.

I have come a long way from when I first started experiencing all sorts of symptoms, I hope you find this encouraging. While I have shown significant improvement, I am in no way over my Chronic Fatigue or Fibromyalgia. Sadly, there's no one-size-fits-all solution and the best you can do is try to get ahead of it with a program that eases pain, boosts stamina and reduces stress.  I have not tried going to an immunologist or an infectious disease specialist. Those options are still on my list to consider.

Meanwhile, I know this disease is isolating, so try connecting with people who understand where you are coming from, it can make all the difference on how you approach your health treatment.

One key tip: PACE yourself, even when  you feel almost normal.

I hope and pray you have a fatigue and pain free day.

 68P5X9ABQPEE

Is There A Connection Between Gluten Allergies And Chronic Fatigue?

Is There A Connection Between Gluten Allergies And Chronic Fatigue?
(written by Guest: Amanda Tradwick)

The connection between allergies to gluten and chronic fatigue syndrome is suspected but still not widely studied. Because many of the symptoms overlap—especially digestive issues, mouth sores, overwhelming fatigue and narcolepsy---it is possible that you may have Celiac’s Disease (severe allergies to gluten) and be misdiagnosed with Chronic Fatigue Syndrome. It is also possible that these two conditions are indeed related and that dealing with the gluten sensitivity may alleviate some of the symptoms of Chronic Fatigue.

It appears that people who develop Chronic Fatigue Syndrome usually have weakened adrenal glands. Because people with weakened adrenal glands also are vulnerable to allergies and other conditions related to weakened immune systems, the connection between gluten sensitivities and Chronic Fatigue is very possible. Is one condition causal? We aren’t sure, but we do know that a high percentage of the people who are diagnosed with Celiac’s Disease (gluten sensitivities) also are diagnosed with Chronic Fatigue Syndrome.

In some cases, people (with Chronic Fatigue Syndrome) who were not diagnosed with Celiac’s Disease saw improvements in health after they cut gluten out of their diets. Is this because the gluten was exacerbating the symptoms of Chronic Fatigue, or was this because gluten can trigger an immune system response n people who are gluten sensitive but who don’t actually have Celiac’s Disease? The scientific world isn’t sure what link exists between these conditions, but there is enough overlap to call attention to the possibility of a connection.

Why Not Try Going Gluten Free?

Whichever, the case, it’s wise to address the possibility of gluten sensitivity if you have been diagnosed with Chronic Fatigue Syndrome. This can be accomplished through adherence to an elimination diet and careful record keeping. Many people find that their symptoms improve when they eat gluten-free. Even if eating gluten-free doesn’t eliminate all of your Chronic Fatigue symptoms, the improvement is sure to be welcomed.

What If Going Gluten Free Doesn’t Help?

Unfortunately, not everyone who goes gluten-free feels better. Some medial experts speculate that the switch to a gluten-free diet hasn’t been tried long enough to see if the results will come; others say that the condition came on because of gluten allergies, but the condition won’t go away just because you take gluten out of your diet. Think of heart disease; you may have developed heart disease because of an unhealthy diet, but changing your diet will only help your heart health somewhat. It won’t completely reverse the effects of years of eating a heart-unhealthy diet.

If you try going gluten-free, commit to trying it for a good three months before you decide if the change in diet has helped you or not. Keep good records and commit to a completely gluten-free diet so you won’t have any question in your mind as to whether the dietary change worked or not. It’s tough to go gluten-free, but once you get used to cooking and eating this way, it will become easier as you find substitutions for old favorites and get used to the new recipes.


About the author:

Amanda Tradwick is a grant researcher and writer for CollegeGrants.org. She has a Bachelor's degrees from the University of Delaware, and has recently finished research on college grants for single mothers and school grants for adults.

Sleep Medicine Consultants

Hello My Friends,

I have been very busy trying to keep Jerry (my hubby) out of the hospital and actually working towards taking the time to exam and research my own health issues.

The good news is Jerry has been out of the hospital (knock on wood!) and generally feeling better. My news:

The last time I visited my pain management doctor, he referred me to the Sleep Medicine Consultants, Dr. J Douglas Hudson, M.D. and his staff. He also gave me a script for Lyrica. I did not fill the script because the insurance company required more information prior to approving the medication. I told the pharmacy to put it on hold because I am concerned about the cost and the side effects.

I did make an appointment with J Douglas Hudson M.D. at the Sleep Medicine Consultants in Austin, TX. My appointment was with Mary Youngwith R.N., F.N.P. The appointment was pleasant, informative, and we have discussed and agreed upon plans to assist me with my sleep challenges. She was open and made me feel very comfortable.

Under the supervision of Dr. Hudson, Mid-level Practioners' take patient medical histories, perform physical exams, make assessments, and order labs, tests, and write prescriptions as appropriate.

Mary Youngwith R.N., F.N.P. was well versed on Chronic Fatigue Syndrome and Fibromyalgia! She told me she was currently reading Dr. Teitelbaum's book Fatigued to Fantastic. She gave me a copy of a study that referred to the use of D-ribose in chronic fatigue syndrome and fibromyalgia: a pilot study. The conculsions: D-ribose significantly reduced clinical symptoms in patients suffering from fibromyalgia and chronic fatigue syndrome.

She made no promises but believed it would not hurt to try the D-ribose. I have a follow-up appointment on Monday, February 28, 2011. Unfortunately, I have not been able to locate the D-ribose. I will have to order it off the Internet. Once I buy the D-ribose, I am to take 5 grams 3x/day, then 5 grams 2x/day after 3-4 days. i was hoping to use it prior to our appointment:( I do plan on purchasing it off the Internet. She placed me on some low dose medications to help with my sleep. She wants to review my sleep patterns and then maybe I will complete a sleep study to check for sleep apnea. She did not want me to complete a sleep diary because sometimes it keeps you from assessing the real problem. We tend to focus to much on sleep and sometimes stay awake thinking about what we can do to help us sleep.

Meanwhile, the following link will give you some tips that will help you sleep well:

Other news, my visit with my regular PCP unfolded some bad news, I had an infection and required some meds, no biggie. However, I was also diagnosed with diabetes.:( Not good! I am in denial and plan on taking diet and exercise measures to prove I do not have diabetes. The doctor said he knew I was going to fuss at him:) and not believe him. That follow-up day I tested at 121, not bad, but not my normal reading. He gave me a Blood Glucose Monitoring System, medication and I must have a follow-up appointment in 2-3 months. Wow, do I have work to do!

I will admit I had been on a sweet binge! No more! I have to behave and start getting serious about my diet and exercise habits. I have not had much interest in food and started snacking on unhealthy foods. So, don't make the same mistake I did. Stay true to your healthy diet and exercise.

That is all for today! I hope I did not bore you. Take care and I hope and pray everyone has a pain and fatigue free day!

Dealing with Chronic and Terminal Illness by Eric Stevenson

Hello Everyone,

The following article was written by Eric Stevenson, he is very passionate about people's health and the long term side effects. Thanks Eric for writing this article and sharing information!

Western medicine is built on a model of battle: fighting the enemy disease until victorious. This is an appropriate model for many conditions, but often leaves both doctors and patients feeling helpless when an illness is incurable or fatal. However, living with a terminal or chronic illness should not be thought of as a lost or losing battle.

While chronic illnesses are not always terminal, certain coping strategies can be effective for either. Maintaining mental and emotional health is just as important as physical health. Depression and anxiety can disrupt eating and sleeping habits, which can take a physical toll. The American Psychological Association recommends staying connected to friends, family, or support groups; taking care of one’s self through a healthy diet and exercise; and maintaining a daily routine to provide stability. Of course, consulting with a licensed therapist or counselor is always recommended.

Symptoms of many chronic diseases – autoimmune disease, CFS, endocrine disease, fibromyalgia – may overlap with those of debilitating fatal diseases like leukemia, lymphoma, or mesothelioma. Symptoms of mesothelioma, like many other cancers, can include fatigue. WebMD recommends the following activities for raising energy:

● Increasing magnesium intake with nuts, whole grains, or fish
● Taking a walk
● Taking a 60-minute nap
● Eating a healthy breakfast and not skipping any meals
● Reducing stress
● Drinking more water (and less alcohol)
● Eating more whole grains (and less sugar)
● Eating a healthy snack between meals
● Drinking a latte instead of black coffee

These strategies might not be appropriate or feasible for everyone, but they may help to offset the low energy that comes with many chronic or terminal illnesses.

Living with a terminal illness is obviously different from living with a chronic illness. As an example, mesothelioma life expectancy over five years is less than 10%, whereas chronic fatigue syndrome rarely shortens life expectancy at all. However, authorities on chronic and terminal illnesses alike stress the importance of positive thinking. While being realistic about the future is important, it is also vital to maintain a positive outlook in order to lower stress and reduce depression.

By Eric Stevenson, a health and safety advocate, for questions about this article please feel free to contact him at epicsurvivor@gmail.com

I hope and pray everyone experiences a pain and fatigue free day.

Applying for Disability based on Fibromyalgia (by Tim Moore)

Hello Everyone,

The following article was written by Tim Moore. Tim is a former medicaid-disability caseworker and a former disability claims examiner for the social security administration's DDS, or disability determination services. Thank you Tim!


Applying for Disability based on Fibromyalgia

SSDI (Social security disability insurance) and SSI disability claims that are filed on the basis of fibromyalgia will come up against the same problems as other disability cases, including:

1. High denial rates at the disability application and first appeal levels (the first appeal is the request for reconsideration).

2. Very long waiting periods for decisions at all steps in the system.

3. Incredibly long waits for disability hearings to be scheduled (a problem that has intensified in recent years and may only get worse).

and, finally,

4. A system that, on its face, can not only appear complex and confusing, but almost designed to result in financial disaster for most claimants.

Unfortunately, disability claims for which fibromyalgia is a primary allegation have their own specific problems, problems that are somewhat unique. One of those particular difficulties is that a claimant with this condition can find it difficult to obtain needed support from their treating physician. This can be due to a host of reasons, including, unfortunately, the fact that many doctors do not find it worth their time to provide documentary support for a patient's disability claim, but also the fact that a certain percentage of physicians are not in support of fibromyaliga as a valid diagnosis (this despite the fact that medications are currently being approved by the FDA for the treatment of fibromyalgia).

The other problem, of course, is the fact that SSA does not expend much effort in recognizing fibromyalgia as a condition in its own right. Though there have been policy pronouncements regarding FMS, fibromyalgia still does not have a separate listing in the blue book, the social security administration's impairment listing manual that is published under the name "Disability Evaluation under Social Security".

Is a claim for disability benefits based on fibromyalgia an uphill climb? To some extent, it may be. However, the fact is that seventy percent of all social security disability claims that are filed with the social security administration are initially denied, regardless of the impairment. Those same claimants, if they pursue the appeals process to the level of an administrative law judge hearing and have able representation, will stand a better than sixty percent chance of being awarded benefits. Therefore, the best advice for any claimant is simply not to give up on a claim. If the initial claim is denied, file a request for reconsideration appeal. If this appeal is denied, file a request for a hearing.

What do judges look for when they hear cases based on fibromyalgia? As with all cases, the judge will look for evidence of physical or mental limitations that rule out the ability of the claimant to return to their past work. The judge will also examine whether or not these limitations rule out the ability of the claimant to perform some other type of work that might seem suitable based on the claimant's condition, age, education, and work experience.

However, with regard to claims predicated on fibromyalgia, disability judges will also give more credence to medical evidence that emanates from specific types of treating sources. In other words, medical records obtained from a pain treatment specialist can often offer more validity than records from an internist. Likewise, a diagnosis either obtained from, or corroborated by, a rheumatologist may carry substantially more weight than a diagnosis obtained from a family physician who has no specialization in fibromyalgia or conditions involving pain or fatigue.

The author of this article is Tim Moore, a former medicaid-disability caseworker and a former disability claims examiner for the social security administration's DDS, or disability determination services. Tim Moore is the publisher of The Social Security and Disability Resource Center.

I hope and pray everyone has experienced less pain and fatigue today.

The Prayer Position Stretch

Hello Everyone,

The Prayer Position Stretch

1). Start by holding your hands in a prayer position.

2). Raise your arms over your head keeping your hands together in a prayer position.

3). Turn your palms outward (the front of your hands are now placed together in this position).

4). Stretch your arms downward as you separate your hands bringing your elbows down and place your hands back into the prayer position.

5). Repeat (2 to 3) two to three times.

Note: Please make sure to perform this exercise within your pain-free range of motion.


I pray and hope this information has helped someone today.

Viv